MeMe Bear Cares Initiative
Crowdfunding Completed: April 19, 2015
Amount Funded: $0
Project Owner: The Esther Coalition
Short Description of Project
Our mission is to empower and educate families who love and care for children with severe disabilities by offering compassion based, direct advocacy and supportive services with dignity and integrity.
How was this project connected to UU?
The Esther Coalition President is an Unitarian Universalist church member and aspiring UU minister.
The Esther Coalition is a faith based advocacy and empowerment organization purposed to educate and empower families who love and care for children with severe disabilities. Our project corresponds with Unitarian Universalist first principle: the inherent worth and dignity of every person; second principle: justice, equity and compassion in human relations; sixth principle: the goal of world community with peace, liberty, and justice for all; and seventh principle: respect for the interdependent web of all existence of which we are a part.
Full Description of Project
MeMeBear Cares Initiative is to raise awareness of a genetic disorder (Trisomy 18) that happens 1 in every 5,000 livebirths and primarily impacts female infants. Many medical doctors do not anticipate the infant to live beyond their 1st birthday. Miraculously, we have found children ranging in age from 5 years old to 25 years old living with Trisomy 18 throughout Michigan and outside research has shown there are 474 children/young adults living with Trisomy 18 in Michgan. However, many of these families and their children/young adults with Trisomy 18 are living isolated in their homes without any community and/or home-based supports heavily relying on a single parent with limited income.
Our program would be the first model for providing direct care services in community for families who love and care for children with severe disabilities. We will provide an unique program by opening a space for both children with and without disability to come together to play, share a meal and engage in educational lessons together. We will eliminate a gap in direct supportive services for families who love and care for children with severe disabilities by offering community living supports and respite for families.